Resources

You’re not alone in this diagnosis – there’s a community of people just like you looking for answers, guidance, and support.

videos

Rare Disease Day Special 2017: Understanding Neuroendocrine Tumors

Leigh Anne Burns nutrition video from New Jersey NETs meeting

Dr. Hendifar from LACNETS conference in June

These materials can help you get a grasp on the impact of the symptoms you’re experiencing and how to approach treatment.

Nutritional Concerns For The Carcinoid Patient

Patient Education On Carcinoid Syndrome From Diagnosis To Treatment

Know the signs and understand your treatment options

Download these helpful resources to help you discuss carcinoid cancer with your doctor.

Carcinoid syndrome discussion guide

Use this helpful tool to guide your conversation on carcinoid syndrome the next time you have an appointment with your doctor.

Download PDF

Carcinoid syndrome symptom tracker

Keep track of your symptoms; chart their occurrences and frequency with this symptom tracker.

Download PDF

Get help with insurance support by learning the resources available to you.

Insurance Support

Download this Carcinoid NETs Health Storylines app to your mobile device to track your treatment progress, record the foods you eat, and more!

Stay up-to-date with what’s happening in the NET and carcinoid syndrome communities.