Welcome to the carcinoid syndrome blog

You’re in the right place for articles, news, and information on NETs and carcinoid syndrome.

Updated monthly, this blog is a place to get information on NETs and carcinoid syndrome, from the perspectives of real patients, caregivers, doctors and other health professionals in the community.

Check below to find our latest article, or scroll down to explore articles from previous months


Being Your Own Best Advocate August 4, 2017

The development of carcinoid syndrome, after a diagnosis of a neuroendocrine tumor, can be an intense and intimidating learning. It’s a change to your health that comes with questions and uncertainty, as the treatment path is long and different for every individual. But it’s also an opportunity to find answers and become your own best advocate for your overall health and future care.

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Investigators Chart Frequency of Carcinoid Syndrome in NET Patients July 28, 2017

Physicians from MD Anderson Cancer Center in Houston, Texas, recently published an analysis to determine the frequency of carcinoid syndrome in patients with neuroendocrine tumors.

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Patient Education on Carcinoid Syndrome from Diagnosis to Treatment June 27, 2017

On March 1, 2017 Cancer Coach Live in cooperation with the Carcinoid Cancer Foundation held a live program focused on carcinoid syndrome. The event featured NET cancer expert Edward M. Wolin, MD; CCF Chief Operating Officer Grace Goldstein; and patients Mitch Berger, Giovanna Imbesi, and Rick Mainwaring. Watch this discussion about best practices in diagnosis and treatment.

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Welcome to the Place for Education and Support Resources on Carcinoid Syndrome June 26, 2017

The Carcinoid Cancer Foundation and its generous partners are excited to introduce the Carcinoid Syndrome website. This website is a space for news and education on carcinoid syndrome, along with information on neuroendocrine tumors (also known as carcinoid cancer). We believe this site will be a great resource for patients, caregivers, and physicians alike – looking to learn more about carcinoid syndrome.

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