Welcome to the carcinoid syndrome blog

My take on carcinoid syndrome — Keep fighting.

My name is Geri McDowell, and I’m a proud resident of Lexington, Kentucky.  After years of abdominal discomfort I was diagnosed with small intestine neuroendocrine tumors in 2003.  Surgery kept the disease in check, but five years later it reoccurred, this time along with the classic symptoms of carcinoid syndrome—abdominal pain and diarrhea.

Are you wondering what are the best foods to eat if you have carcinoid syndrome?  What changes should you make to your diet if you have neuroendocrine tumors? The neuroendocrine tumor (NET) community is invited to attend a national webcast on Wednesday, October 18 featuring nutritionist Leigh Anne Burns, who has extensive experience working with NET patients.  The free webcast will begin at 7 pm EST, 6 pm CST, 5 pm MST, and 4 pm PST.  This presentation, sponsored by Lexicon Pharmaceuticals is part of a special series of webcasts designed to give patients living with neuroendocrine tumors direct access to thought leaders in the NET community.

The development of carcinoid syndrome, after a diagnosis of a neuroendocrine tumor, can be an intense and intimidating learning. It’s a change to your health that comes with questions and uncertainty, as the treatment path is long and different for every individual. But it’s also an opportunity to find answers and become your own best advocate for your overall health and future care.