Welcome to the carcinoid syndrome blog

You’re in the right place for articles, news, and information on NETs and carcinoid syndrome.

Updated monthly, this blog is a place to get information on NETs and carcinoid syndrome, from the perspectives of real patients, caregivers, doctors and other health professionals in the community.

Check below to find our latest article, or scroll down to explore articles from previous months


Geri McDowell — Keep Looking for Solutions November 5, 2017

My take on carcinoid syndrome — Keep fighting.

My name is Geri McDowell, and I’m a proud resident of Lexington, Kentucky.  After years of abdominal discomfort I was diagnosed with small intestine neuroendocrine tumors in 2003.  Surgery kept the disease in check, but five years later it reoccurred, this time along with the classic symptoms of carcinoid syndrome—abdominal pain and diarrhea.

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Nutrition for Neuroendocrine Tumors and Carcinoid Syndrome: Find Foods You Love! October 11, 2017

Are you wondering what are the best foods to eat if you have carcinoid syndrome?  What changes should you make to your diet if you have neuroendocrine tumors? The neuroendocrine tumor (NET) community is invited to attend a national webcast on Wednesday, October 18 featuring nutritionist Leigh Anne Burns, who has extensive experience working with NET patients.  The free webcast will begin at 7 pm EST, 6 pm CST, 5 pm MST, and 4 pm PST.  This presentation, sponsored by Lexicon Pharmaceuticals is part of a special series of webcasts designed to give patients living with neuroendocrine tumors direct access to thought leaders in the NET community.

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Webinar on Testing for Neuroendocrine Tumors and Carcinoid Syndrome September 5, 2017 Read More
Being Your Own Best Advocate August 4, 2017

The development of carcinoid syndrome, after a diagnosis of a neuroendocrine tumor, can be an intense and intimidating learning. It’s a change to your health that comes with questions and uncertainty, as the treatment path is long and different for every individual. But it’s also an opportunity to find answers and become your own best advocate for your overall health and future care.

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Investigators Chart Frequency of Carcinoid Syndrome in NET Patients July 28, 2017

Physicians from MD Anderson Cancer Center in Houston, Texas, recently published an analysis to determine the frequency of carcinoid syndrome in patients with neuroendocrine tumors.

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