Welcome to the carcinoid syndrome blog

You’re in the right place for articles, news, and information on NETs and carcinoid syndrome.

Updated monthly, this blog is a place to get information on NETs and carcinoid syndrome, from the perspectives of real patients, caregivers, doctors and other health professionals in the community.

Check below to find our latest article, or scroll down to explore articles from previous months


Likely Suspects: How Hormones May Lead to Carcinoid Syndrome April 30, 2019

Likely Suspects: How Hormones May Lead to Carcinoid Syndrome is the newest webcast in the Carcinoid Syndrome Web Series, education for patients presented by Lexicon Pharmaceuticals.  Michael Morse, MD from Duke University Medical Center and Ronny Allan, NET patient advocate, break down the science of hormones made by neuroendocrine tumors (NETs). Excess serotonin, one the most common hormones released by NETs, may have a serious impact on your health.  Learn more from this free webcast, which you can watch at your convenience.

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CCF Presents Facebook Live with NET Expert Richard R.P. Warner, MD – April 19 at 1 pm, EST April 16, 2019

You are invited to attend a Carcinoid Cancer Foundation Facebook Live event with Richard R.P. Warner, MD on Friday, April 19, 2019 at 1 pm, Eastern Standard Time. Dr. Warner will give an in-depth presentation on Carcinoid Syndrome and Serotonin. Considered one of the world’s leading experts on neuroendocrine cancer and carcinoid syndrome, Dr. Warner is Founder of the Carcinoid Cancer Foundation and Founder of the Center for Carcinoid and Neuroendocrine Tumors at Mount Sinai Health System in New York City.

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News to Use, News to Share: Free Online CE Activity Helps Providers Optimize Treatment of Carcinoid Syndrome in NETs Patients February 14, 2019

An online Continuing Education (CE) activity, “Optimizing Treatment of Carcinoid Syndrome in Patients with NETs,” is available for health professionals and should also be shared by patients with their providers. The program runs through March 8, 2019. Reflecting the most current knowledge in helping patients manage carcinoid syndrome, this free, 48-minute CE activity is jointly offered by the Postgraduate Institute for Medicine and i3 Health.

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Talking to Your Doctor About Carcinoid Syndrome Symptoms, Diet and Treatment November 3, 2018

An Online Video Education Program for Patients and Caregivers

 

In March 2017 we released our first live educational program in partnership with CancerCoachLive.com, designed for families managing Carcinoid Syndrome. The initial program was such a success that we teamed up to release a second program!

Our second program premiered live on CancerCoachLive.com in June and also streamed live on Facebook. This new program focuses on how a diagnosis is reached, what to eat when everything seems to make symptoms worse, and advice about how to medically manage Carcinoid Syndrome over time.

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Free App Gives A Measure of Control Back To Patients Living With NETs and Carcinoid Syndrome May 22, 2018

A free, easy-to-use app, Carcinoid NETs Health Storylines, is empowering patients to be proactive in tracking and staying on top of the many aspects of life with neuroendocrine tumors (NETs) and carcinoid syndrome. Says NETs patient and Self Care Ambassador Beth Leonard, the app “allows me to feel I have some semblance of control in a disease that’s not in my control.”

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